Data Fields

The Following list shows the data that is available to approved research projects in addition to the Epidemiology Questionnaire


Table Field Description Available values
BloodSpecimen DateTaken Date the blood was drawn from the participant  
BloodSpecimen DateReceived Date the blood was received by the kConFab lab  
BloodSpecimen DateProcessed Date the blood was processed by the kConFab lab  
BloodSpecimen NonBloodType Sample type collected if not blood (usually mouthwash)  
BloodSpecimen BloodQty Qty of blood taken  
BloodSpecimen PlasmaAliquot Qty of plasma aliquot available  
BloodSpecimen WhiteCellAliquot Qty of white cell aliquot available  
BloodSpecimen NonLymphAliquot Qty of non-lymph aliquot available  
BloodSpecimen Guthrie Number of guthrie cards available  
BloodSpecimen CurrentlyPregnant Was the participant pregnant at the time the blood was taken  
BloodSpecimen DateLastMenstrual Date of last menstrual period when blood was taken  
BloodSpecimen AveDaysMenstrualCycle Average number of days of menstrual cycle for participant  
BloodSpecimen Menopause Had the participant reached menopause at the time the blood was taken  
BloodSpecimen OCP Was the participant taking the oral contraceptive pill at the time the blood was taken  
 
BreastNormalPath ArchPattern Silverberg architectural pattern  
BreastNormalPath NuclearPleo Silverberg nuclear pleopmorphism  
BreastNormalPath Mitotic Silverberg mitotic activity  
BreastNormalPath Cellularity Silverberg cellularity  
BreastNormalPath Neoplastic % neoplastic component
BreastNormalPath Lymph Non-neoplastic component: % lymph
BreastNormalPath Stroma Non-neoplastic component: % stroma
BreastNormalPath NormalType1Percent Normal epithelium component: % type 1
BreastNormalPath NormalType2Percent Normal epithelium component: % type 2
BreastNormalPath Necrotic % necrotic component
BreastNormalPath Morphology Morphology description  
BreastNormalPath records QA results for normal (prophylactic) breast tissue
 
Cancer CancerSite Site of cancer  
Cancer Laterality Laterality of cancer
Cancer Diagnosed Date diagnosed  
Cancer DiagnosedApprox Was diagnosis date approximate  
Cancer DiagnosisDateUnknown Diagnosis date not able to determined (Diagnosed will not be given if this field is true)  
Cancer VerificationOutcome Was the cancer able to be verified  
 
CellLine BloodSpecimen Blood specimen from which the EBV Cell Line was transformed  
 
Death CancerCause Did the participant die from cancer  
Death CancerSite Site of the cancer that contributed to the participant's death  
Death RegNo Death Registry number  
 
DNA_RNA Source Sample source of the DNA/RNA
 
Family UFN Unique family ID  
Family ClinicCounsellor Counsellor who referred the family to kConFab  
Family CriteriaOnEntry Straddie criteria the family was recruited on  
Family FamilyReviewDate Date at last family review  
Family CriteriaOnReview Straddie criteria at last review  
 
FamilyMutation Nomenclature Description of classified mutation  
FamilyMutation Gene Gene of classified mutation  
FamilyMutation MutationEffect Effect of classified mutation
 
Haplotype BRCA1 UFN Family number  
Haplotype BRCA1 Kindred type Kindred type  
Haplotype BRCA1 BRCA1 shared/typed BRCA1 shared/typed  
Haplotype BRCA1 Date Date tested  
 
Haplotype BRCA1 and BRCA2 UFN Family number  
Haplotype BRCA1 and BRCA2 Kindred type Kindred type  
Haplotype BRCA1 and BRCA2 BRCA1 shared/typed BRCA1 shared/typed  
Haplotype BRCA1 and BRCA2 Date Date tested  
 
Haplotype BRCA2 UFN Family number  
Haplotype BRCA2 Kindred type Kindred type  
Haplotype BRCA2 BRCA2 shared/typed BRCA2 shared/typed  
Haplotype BRCA2 Date Date tested  
 
Haplotype Neither UFN Family number  
Haplotype Neither Kindred type Kindred type  
Haplotype Neither Date Date tested  
 
Mutation DateSent Date the mutatation was reported  
Mutation Gene Gene tested  
Mutation MutationResult Result of the mutation test (positive or negative)  
Mutation ResultType Diagnostic (clinical) or research (kconfab) mutation test  
Mutation TestMethod The method used for the test  
Mutation Predictive Was the test a predictive test  
Mutation FullScreen Was the whole gene tested  
Mutation Exon13 Was Exon 13 tested  
Mutation LargeDeletion Was the test a search for a large deletion  
Mutation MutationDesc Description of the mutation as given by the testing laboratory  
Mutation FamilyMutation Link to the Family mutation the test relates to  
 
OvNormalPath Side Tissue laterality  
OvNormalPath SurfaceEpi Presence of surface epithelium  
OvNormalPath EpiAmount Amount of surface epithelium
OvNormalPath Pappilations Presence of surface epithelium papillations  
OvNormalPath PapAmount Amount of epithilium papillations
OvNormalPath Cysts Presence of epithelial inclusion cysts  
OvNormalPath CystAmount Amount of epithilial cysts
OvNormalPath Invaginations Presence of cortical invaginations  
OvNormalPath InvagAmount Amount of cortical invaginations
OvNormalPath Stroma Presence of stroma  
OvNormalPath Follicles Presence of cortext follicles  
OvNormalPath CorpLutea Presence of cortex corpora lutea  
OvNormalPath FollCysts Presence of follicular cysts  
OvNormalPath Rete Presence of rete ovarii  
OvNormalPath Fallopian Presence of fallopian tube  
OvNormalPath Morphology Preservation of morphology
OvNormalPath %Tumour % tumour in sample  
OvNormalPath records QA results for normal (prophylactic) ovarian tissue
 
Pathology CancerSite Site pathology tissue was taken from  
Pathology Prophylactic Was the procedure for prophylactic treatment  
Pathology Side Side of the body the tissue was taken from  
Pathology PathCentre Pathology laboratory that issued the report  
Pathology Report Date Date the report was generated by the pathology laboratory  
Pathology PathologyProcedure Procedure that extracted the sample that was tested
Pathology PathSampleType Type of tissue that was extracted
Pathology Tumour Did the tested sample contain tumour  
Pathology TumourSize Size of tumour found  
Pathology Topography Topography classification (ICD-O description)  
Pathology Morphology Morphology classification (ICD-O description)  
Pathology Behaviour Behaviour classification
Pathology Grade Grade classification  
Pathology Oestrogen Oestrogen receptor test result  
Pathology Progesterone Progesterone receptor test result  
Pathology CA125 CA125 test result  
Pathology HER2 HER2 test result  
Pathology PSA PSA test result  
Pathology Gleason Gleason score  
Pathology NodesTested Number of lymph nodes tested if blank then not detailed in report
Pathology NodesPositive Number of positive lymph nodes  
 
PathologyReview ReviewDate Date of the pathology review  
PathologyReview SourceLab Pathology laboratory who generated the original pathology report  
PathologyReview TumourSize Tumour diameter recorded on report (mm)  
PathologyReview HR Were hormone receptor tested  
PathologyReview HRMethod Method used to test the hormone receptors
PathologyReview ER Oestrogen receptor “Positive” or “Negative” and quantitative result (if supplied)  
PathologyReview PR Progesterone receptor “Positive” or “Negative” and quantitative result (if supplied)  
PathologyReview LNNumber Number of lymph nodes identified  
PathologyReview MetNum Number of lymph nodes containing metastases  
PathologyReview SentinalSelect Staining results for sentinal nodes
Pathology review is performed only on slide review samples
 
Person UPN Unique person ID  
Person Gender Gender of participant  
Person StartDate Date the participant's details were added to the database  
Person DOB Date of birth of the participant  
Person DOBUnknown Is the date of birth approximate  
Person DeathDate Date of death of the participant  
Person DeathDateApprox Is the date of death approximate  
Person NoFamilyHistory The participant has no family history of their own  
Person Affected Has the participant been affected by cancer (all cancer types)  
 
PersonOtherStudy OtherStudy Description of other study the participant is enrolled in  
 
PersonRelation PersonID Participant ID  
PersonRelation PersonID2 Participant's relation ID  
PersonRelation Relation Nature of the relationship to the participant
Family pedigrees are also available in .jpg or Progeny format
 
ProstatePath Lab Pathology laboratory from which the slide was sourced  
ProstatePath Histology Prostate histology
ProstatePath SpecimenType Specimen type
ProstatePath SpecimenBiopsyCores If specimen type is biopsy; the number of cores  
ProstatePath SpecimenBiopsyCoresTumour If specimen type is biopsy; the number of cores with tumour  
ProstatePath TumourVolume Tumour Volume
ProstatePath GleasonScore1 Gleason score: primary pattern  
ProstatePath GleasonScore2 Gleason score: secondary pattern  
ProstatePath PrimaryTumour If no tumour
ProstatePath PrimaryTumourT1 Extent of clinically inapparent tumour
ProstatePath PrimaryTumourT2 Extent of tumour confined within prostate
ProstatePath PrimaryTumourT3 Tumour extends through prostate capsule
ProstatePath PrimaryTumourT4 Tumour is fixed or invades adjacent structures  
ProstatePath RegionalNodes Status of regional lymph nodes
ProstatePath DistantMetastasis Distant metastasis
ProstatePath ResectionMargins Involvement of resection margins  
ProstatePath Extra-prostatic extension Extent of extra-prostatic extension
ProstatePath PerineuralInvasion Presence of perineural invasion  
ProstatePath NeurovascularBundles Involvement of neurovascular bundles  
ProstatePath Lymphovascular invasion Presence of lymphovascular invasion  
ProstatePath NeuroendocrineFeatures Presence of neuroendocrine features  
ProstatePath IntraEpithelialNeoplasia Presence of high grade prostatic intraepithelial neoplasia  
ProstatePath OtherFeatures Any other histological features
ProstatePath records QA results for prostate tissue
 
SlideReview SourceLab Pathology laboratory from which the slide was sourced  
SlideReview AccessionNumber Laboratory accession number  
SlideReview SlidesExamined Which slides were examined  
SlideReview ObsDate Review date  
SlideReview HistoSubType Histological subtype of invasive carcinoma
SlideReview LobType Lobular type
SlideReview Tubule Extent of tubule formation
SlideReview NuclearPleo Extent of nuclear pleomorphism
SlideReview Mitotic Total mitotic figures in 10 high power fields  
SlideReview MitoticTotal Mitotic score (1, 2 or 3)  
SlideReview Grade Overall grade  
SlideReview SolidSheet % of tumour as solid sheet of cells  
SlideReview Circumference % circumference continuous pushing margin  
SlideReview Necrosis Confluent necrosis (“Present” or “Absent”)  
SlideReview Infiltrate Tumour lymphocytic infiltrate
SlideReview Borders Tumour cells: presence of discernable cell borders  
SlideReview Vesicular Tumour cells: presence of vesicular nuclei  
SlideReview EoNucleoli Tumour cells: presence of prominent eosinophilic nucleoli  
SlideReview DCISMass % DCIS  
SlideReview DCISExtending Is the DCIS extending beyond the confines of the main tumour mass  
SlideReview DCISGrade DCIS nuclear grade
SlideReview DCISNecrosis DCIS necrosis
SlideReview DCISPolarisation Presence of DCIS cell polarisation  
SlideReview DCISArchitecture DCIS architectural pattern (multiple selections)
SlideReview LCIS Presence of LCIS  
SlideReview BRCA1 Is the sample consistent with a BRCA1 phenotype  
Slide review is performed by a pathologist on all BRCAX families
 
TissueAliquot DateReceived Date the tissue aliquot was received by the kConFab laboratory  
TissueAliquot TissueSize The aliquot size  
TissueAliquot SampleType Type of sample stored
TissueAliquot WeightGM The aliquot weight  
TissueAliquot Side Side of the body the tissue was taken from  
TissueAliquot Tumour Is there tumour present in the aliquot  
TissueAliquot NoSlides If the SampleType is slide, indicates the number of slides stored  
 
TissueCollection TissueType The type of tissue collected  
TissueCollection DateTaken The date the tissue was collected  
TissueCollection Prophylactic Was the tissue removed for prophylactic reasons  
TissueCollection TimeToFrozen The time taken to freeze the tissue  
TissueCollection records details of a surgical collection event. Each collection may be divided into a number of aliquots which are recorded in the TissueAliquot table
 
TreatmentProcedure OtherProcedure Description of non-cancer-related procedure  
TreatmentProcedure TreatmentProcedure Description of the cancer-related procedure  
TreatmentProcedure StartDate Date the treatment began  
TreatmentProcedure EndDate Date the treatment finished  
TreatmentProcedure Reason The reason for the treatment  
 
TumourPath TissueType Type of tissue QA'd  
TumourPath Grade Tumour grade
TumourPath ArchPattern Silverberg architectural pattern (ovary only)  
TumourPath NuclearPleo Silverberg nuclear pleopmorphism (ovary only)  
TumourPath Mitotic Silverberg mitotic activity (ovary only)  
TumourPath Neoplastic % neoplastic component
TumourPath Lymph Non-neoplastic component: % lymph
TumourPath Stroma Non-neoplastic component: % stroma
TumourPath NormalType1Percent Normal component: % type 1
TumourPath NormalType2Percent Normal component: % type 2
TumourPath Necrotic % necrotic component
TumourPath Morphology Morphology description  
TumourPath BRCAXReview BRCA-like features (breast only)
TumourPath records QA results for tumour tissue (not just breast)

Note that specific data can only be provided for participants who were deceased at time of family enrollment, or who have signed a consent form


The following diagram illustrates the relationship between tables



The information provided on the kConFab Home Page is for information only, and is not a substitute for talking to a health professional.