kConFab Participant Survey

You may have received an invitation via SMS or email to participate in a survey being conducted
by the national Kathleen Cuningham Foundation Consortium for research into Familial Breast cancer (kConFab).

This survey aims to determine if kConFab is communicating with participants in a way that meets their needs
and fulfils our responsibilities as a world-leading biobank for familial breast, ovarian and prostate cancer research.

By participating in this survey, you will be contributing to improving how kConFab communicates with its participants.
There are no expected personal benefits to you the participant.

If you did not receive an invitation but would still like to participate, please contact Heather Thorne at
03 8559 6526 | 1800 221 894 (toll free)
Latest News
Genetic study provides most comprehensive map of risk to date of breast cancer risk. Nature Genetics. January 2020.
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Latest Publications
Multiple ABCB1 transcriptional fusions in drug resistant high-grade serous ovarian and breast cancer. Nature Communications 2019.
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Shared heritability and functional enrichment across six solid cancers. Nature Communications. Jan 2019.
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Do BRCA1 and BRCA2 gene mutation carriers have a reduced ovarian reserve? Protocol for a prospective observational study. BMJ Open. Nov 2019.
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View all our publications

About kConFab

The Kathleen Cuningham Foundation Consortium for Research into Familial Aspects of Breast Cancer (kConFab) brings together geneticists, clinicians, community representatives, surgeons, genetic counsellors, psychosocial researchers, pathologists and epidemiologists from all over Australia and New Zealand who believe the causes and consequences of familial predisposition to breast cancer can be understood only by a concerted national effort at both the basic and clinical level.

In 1997, kConFab, with the help of the Family Cancer centres in Australia and New Zealand began enrolling families with a strong history of breast and breast/ovarian cancer. Genetic, epidemiological, medical and psychosocial data collected from these families by kConFab are stored in a de-identified fashion in a central relational database. Biospecimens collected from family members are used to characterise germ-line mutations in predisposing genes such as BRCA1, BRCA2, ATM, PALB2, p53, PTEN. kConFab has accumulated data on more than 1,900 multigenerational, multi-case kindreds.

kConFab itself is not a research organisation in the usual sense, but rather provides a resource upon which researchers can draw. The aims of the consortium are to make data and biospecimens widely available to researchers for use in peer-reviewed, ethically-approved funded research projects on familial aspects of breast cancer. At present, kConFab is supplying biological specimens and data to more than 180 research projects world wide.

kConFab Questions and Answers

Information on the organisation and structure of kConFab.
Latest updates
Policies and procedures