The kConFab Clinical Follow-Up Project

Who we are

In 2001, the kConFab Clinical Follow-Up Project started to collect long-term data on the families in kConFab. 

What we do

Questionnaires are sent to female kConFab participants every 3 years. The questionnaire asks for updates on:

  • Demographic information
  • Medical history (cancer screening, new cancer diagnoses, cancer treatment history, cancer-related surgeries)
  • Family history
  • Medications
  • Pregnancies and breastfeeding
  • Hormonal contraception
  • Hormone replacement therapy
  • Cancer prevention medications
  • Lifestyle factors (exercise, smoking, alcohol) 

We also request information on new cancers and relevant surgeries from treating hospitals.

What is this information used for?

Using the data, we collaborate within Australia and internationally to address important questions for women with breast cancer.

Please see our Publications page for published studies.

How we are funded

Funding sources:

  • National Breast Cancer Foundation (NBCF)
  • Cancer Australia
  • National Health and Medical Research Council (NHMRC)
  • National Institutes of Health (NIH)